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Social Security Disability Compassionate Allowance

Social Security Disability Compassionate Allowance

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Social Security Disability Compassionate Allowance rules allow an individual with an impairment on the compassionate allowance list to be quickly granted Social Security Disability benefits.

While this is a very necessary and helpful benefit, very few people will actually qualify for compassionate allowance. As Social Security Disability Attorneys, it is imperative to know this list and whether clients meet the severity required of cases. Were a diagnosis is unclear or does not match the language of the listing, it is important to contact the medical provider to seek clarification.

While many Claimant’s will not meet the severity or exact language of the compassionate allowance list, this is but one way to qualify for Social Security Disability benefits. Even though a claimant does not have a listed impairment on the compassionate allowance list, they may nevertheless try to prove their case under a medical-vocational rule, the GRIDS, or the sequential evaluation process.

Below is the most current list of compassionate allowance conditions with the new conditions in red.

Acute Leukemia

Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent

Adult Non-Hodgkin Lymphoma

Adult Onset Huntington Disease

Aicardi-Goutieres Syndrome

Alexander Disease (ALX) – Neonatal and Infantile

Allan-Herndon-Dudley Syndrome

Alobar Holoprosencephaly

Alpers Disease

Alpha Mannosidosis – Type II and III

Alstrom Syndrome

Alveolar Soft Part Sarcoma

Amegakaryocytic Thrombocytopenia

Amyotrophic Lateral Sclerosis (ALS)

Anaplastic Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent

Angelman Syndrome

Angiosarcoma – NEW

Aortic Atresia

Aplastic Anemia

Astrocytoma – Grade III and IV

Ataxia Telangiectasia

Atypical Teratoid/Rhabdoid Tumor – NEW

Batten Disease

Beta Thalassemia Major

Bilateral Optic Atrophy- Infantile

Bilateral Retinoblastoma

Bladder Cancer – with distant metastases or inoperable or unresectable

Breast Cancer – with distant metastases or inoperable or unresectable

Canavan Disease (CD)

Carcinoma of Unknown Primary Site

Caudal Regression Syndrome – Types III and IV

Cerebro Oculo Facio Skeletal (COFS) Syndrome

Cerebrotendinous Xanthomatosis

Child Neuroblastoma – with distant metastases or recurrent

Child Non-Hodgkin Lymphoma – recurrent

Child T-Cell Lymphoblastic Lymphoma

Chondrosarcoma – with multimodal therapy

Chronic Idiopathic Intestinal Pseudo Obstruction – NEW

Chronic Myelogenous Leukemia (CML) – Blast Phase

Coffin-Lowry Syndrome – NEW

Congenital Lymphedema

Cornelia de Lange Syndrome

Corticobasal Degeneration

Creutzfeldt-Jakob Disease (CJD) – Adult

Cri du Chat Syndrome

Degos Disease – Systemic

DeSanctis Cacchione Syndrome

Dravet Syndrome

Early-Onset Alzheimer’s Disease

Edwards Syndrome (Trisomy 18)

Eisenmenger Syndrome

Endometrial Stromal Sarcoma

Endomyocardial Fibrosis

Ependymoblastoma (Child Brain Tumor)

Erdheim Chester Disease

Esophageal Cancer

Esthesioneuroblastoma – NEW

Ewing Sarcoma

Farber’s Disease (FD) – Infantile

Fatal Familial Insomnia

Fibrodysplasia Ossificans Progressiva

Follicular Dendritic Cell Sarcoma – metastatic or recurrent

Friedreichs Ataxia (FRDA)

Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult

Fryns Syndrome

Fucosidosis – Type 1

Fukuyama Congenital Muscular Dystrophy

Fulminant Giant Cell Myocarditis

Galactosialidosis – Early and Late Infantile Types

Gallbladder Cancer

Gaucher Disease (GD) – Type 2

Giant Axonal Neuropathy – NEW

Glioblastoma Multiforme (Adult Brain Tumor)

Glioma Grade III and IV

Glutaric Acidemia – Type II

Head and Neck Cancers – with distant metastasis or inoperable or unresectable

Heart Transplant Graft Failure

Heart Transplant Wait List – 1A/1B

Hemophagocytic Lymphohistiocytosis (HLH) – Familial Type

Hepatoblastoma

Hepatopulmonary Syndrome

Hepatorenal Syndrome

Histiocytosis Syndromes

Hoyeaal-Hreidarsson Syndrome – NEW

Hutchinson-Gilford Progeria Syndrome

Hydranencephaly

Hypocomplementemic Urticarial Vasculitis Syndrome

Hypophosphatasia Perinatal (Lethal) and Infantile Onset Types

Hypoplastic Left Heart Syndrome

I Cell Disease

Idiopathic Pulmonary Fibrosis

Intracranial Hemangiopericytoma – NEW

Infantile Free Sialic Acid Storage Disease

Infantile Neuroaxonal Dystrophy (INAD)

Infantile Neuronal Ceroid Lipofuscinoses

Inflammatory Breast Cancer (IBC)

Jervell and Lange-Nielsen Syndrome

Joubert Syndrome – NEW

Junctional Epidermolysis Bullosa – Lethal Type

Juvenile Onset Huntington Disease

Kidney Cancer – inoperable or unresectable

Krabbe Disease (KD) – Infantile

Kufs Disease – Type A and B

Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent

Late Infantile Neuronal Ceroid Lipofuscinoses

Leigh’s Disease

Leiomyosarcoma

Leptomeningeal Carcinomatosis – NEW

Lesch-Nyhan Syndrome (LNS)

Lewy Body Dementia

Liposarcoma – metastatic or recurrent – NEW

Lissencephaly

Liver Cancer

Lowe Syndrome

Lymphomatoid Granulomatosis – Grade III

Malignant Brain Stem Gliomas – Childhood

Malignant Ectomesenchymoma – NEW

Malignant Gastrointestinal Stromal Tumor

Malignant Germ Cell Tumor

Malignant Melanoma – with metastases

Malignant Multiple Sclerosis

Malignant Renal Rhabdoid Tumor – NEW

Mantle Cell Lymphoma (MCL)

Maple Syrup Urine Disease

Marshall-Smith Syndrome – NEW

Mastocytosis – Type IV

MECP2 Duplication Syndrome

Medulloblastoma – with metastases

Menkes Disease – Classic or Infantile Onset Form

Merkel Cell Carcinoma – with metastases

Merosin Deficient Congenital Muscular Dystrophy

Metachromatic Leukodystrophy (MLD) – Late Infantile

Mitral Valve Atresia

Mixed Dementias

MPS I, formerly known as Hurler Syndrome

MPS II, formerly known as Hunter Syndrome

MPS III, formerly known as Sanfilippo Syndrome

Mucosal Malignant Melanoma

Multicentric Castleman Disease

Multiple System Atrophy

Myoclonic Epilepsy with Ragged Red Fibers Syndrome

Neonatal Adrenoleukodystrophy

Nephrogenic Systemic Fibrosis

Neurodegeneration with Brain Iron Accumulation – Types 1 and 2

NFU-1 Mitochondrial Disease

Niemann-Pick Disease (NPD) – Type A

Niemann-Pick Disease-Type C

Nonketotic Hyperglycinemia

Non-Small Cell Lung Cancer – with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent

Obliterative Bronchiolitis

Ohtahara Syndrome

Oligodendroglioma Brain Tumor – Grade III – NEW

Ornithine Transcarbamylase (OTC) Deficiency

Orthochromatic Leukodystrophy with Pigmented Glia

Osteogenesis Imperfecta (OI) – Type II

Osteosarcoma, formerly known as Bone Cancer – with distant metastases or inoperable or unresectable

Ovarian Cancer – with distant metastases or inoperable or unresectable

Pancreatic Cancer

Pallister-Killian Syndrome – NEW

Paraneoplastic Pemphigus

Patau Syndrome (Trisomy 13)

Pearson Syndrome

Pelizaeus-Merzbacher Disease-Classic Form

Pelizaeus-Merzbacher Disease-Connatal Form

Peripheral Nerve Cancer – metastatic or recurrent

Peritoneal Mesothelioma

Peritoneal Mucinous Carcinomatosis

Perry Syndrome

Phelan-McDermid Syndrome

Pleural Mesothelioma

Pompe Disease – Infantile

Primary Cardiac Amyloidosis

Primary Central Nervous System Lymphoma

Primary Effusion Lymphoma

Primary Progressive Aphasia

Progressive Bulbar Palsy – NEW

Progressive Multifocal Leukoencephalopathy

Progressive Supranuclear Palsy

Prostate Cancer – Hormone Refractory Disease – or with visceral metastases

Pulmonary Atresia

Pulmonary Kaposi Sarcoma

Retinopathy of Prematurity – Stage V

Rett (RTT) Syndrome

Revesz Syndrome – NEW

Rhabdomyosarcoma

Rhizomelic Chondrodysplasia Punctata

Roberts Syndrome

Salivary Tumors

Sandhoff Disease

Schindler Disease – Type 1

Seckel Syndrome – NEW

Severe Combined Immunodeficiency – Childhood

Single Ventricle

Sjogren-Larsson Syndrome – NEW

Sinonasal Cancer

Small Cell Cancer (of theLarge IntestineOvary,Prostate,Thymus – NEW, or Uterus)

Small Cell Lung Cancer

Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent

Smith Lemli Opitz Syndrome

Soft Tissue Sarcoma – with distant metastases or recurrent – NEW

Spinal Muscular Atrophy (SMA) – Types 0 and 1

Spinal Nerve Root Cancer-metastatic or recurrent

Spinocerebellar Ataxia

Stiff Person Syndrome

Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent

Subacute Sclerosing Panencephalitis

Tabes Dorsalis

Tay Sachs Disease – Infantile Type

Thanatophoric Dysplasia – Type 1

The ALS/Parkinsonism Dementia Complex

Thyroid Cancer

Transplant Coronary Artery Vasculopathy

Tricuspid Atresia

Ullrich Congenital Muscular Dystrophy

Ureter Cancer – with distant metastases or inoperable, unresectable or recurrent

Usher Syndrome – Type I

Ventricular Assist Device Recipient – Left, Right, or Biventricular

Walker Warburg Syndrome

Wolf-Hirschhorn Syndrome

Wolman Disease

X-Linked Lymphoproliferative Disease – NEW

X-Linked Myotubular Myopathy – NEW

Xeroderma Pigmentosum

Zellweger Syndrome

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